TY - JOUR
T1 - Researching policy and practice to safeguard people with intellectual disabilities from abuse
T2 - Some methodological challenges
AU - Northway, Ruth
AU - Jenkins, Robert
AU - Jones, Victoria
AU - Howarth, Joyce
AU - Hodges, Zoe
PY - 2013/9/10
Y1 - 2013/9/10
N2 - Abuse of adults with intellectual disabilities can and does occur in many places, and as a result, many countries have instituted policies and enacted laws to address this problem. However, research concerning the impact of such policies on abuse remains largely limited to quantitative studies from the perspective of governmental or other authorities and is generally focused on one area or country. Absent are the views and experiences of people with intellectual disabilities with respect to real or perceived abuse. Given the dearth of research involving primary consumers, there is limited knowledge as to the success or failure of such policies and laws. Though carrying out such research can pose methodological and ethical challenges, not undertaking it can also have ethical and social consequences. An international research agenda that includes participatory research that both facilitates the active involvement of and investment in people with intellectual disabilities and views action as an essential outcome is thus proposed. The authors propose such an agenda and posit that along with the collection and analysis of substantially more robust quantitative data, this should facilitate comparison within and between countries.
AB - Abuse of adults with intellectual disabilities can and does occur in many places, and as a result, many countries have instituted policies and enacted laws to address this problem. However, research concerning the impact of such policies on abuse remains largely limited to quantitative studies from the perspective of governmental or other authorities and is generally focused on one area or country. Absent are the views and experiences of people with intellectual disabilities with respect to real or perceived abuse. Given the dearth of research involving primary consumers, there is limited knowledge as to the success or failure of such policies and laws. Though carrying out such research can pose methodological and ethical challenges, not undertaking it can also have ethical and social consequences. An international research agenda that includes participatory research that both facilitates the active involvement of and investment in people with intellectual disabilities and views action as an essential outcome is thus proposed. The authors propose such an agenda and posit that along with the collection and analysis of substantially more robust quantitative data, this should facilitate comparison within and between countries.
KW - Abuse
KW - Intellectual disabilities
KW - Participatory research
KW - Research methodology
U2 - 10.1111/jppi.12037
DO - 10.1111/jppi.12037
M3 - Article
AN - SCOPUS:84883759914
VL - 10
SP - 188
EP - 195
JO - Journal of Policy and Practice in Intellectual Disabilities
JF - Journal of Policy and Practice in Intellectual Disabilities
SN - 1741-1122
IS - 3
ER -