Online support programmes for family carers of people with intellectual disabilities: Systematic review of the international evidence base

Background: This systematic literature review examines the evidence base for use of online support programmes for family carers of people with intellectual disabilities. Methods: Preferred Reporting Items for Systematic reviews and Meta-Analyses (PRISMA) guidelines were followed. Databases ERIC, Medline, PsycINFO & CINAHL were searched for studies published between 2011 and 2021. Inclusion criteria were applied to all studies resulting in the inclusion of 19 empirical articles. The research team performed data extraction and quality appraisal using standardised appraisal tools. Results: The quality of the included studies were rated as strong (n=6), moderate (n=11) and weak (n=2). Barriers to using online programmes included access to technology and technical difficulties while facilitators related to accessibility to treatments, reduced costs and flexibility. The majority of included papers (n=14) sought to work with family carers to support their family member with disabilities, rather than to address the specific needs of carers. Conclusions: Online programmes offer the potential to provide great benefit to family carers of people with intellectual disabilities. However, the majority of research has not sought to directly address the needs of carers nor has it sought their views in creating these programmes. A collaborative approach to programme development that engages family carers offers the opportunity to tailor supportive interventions which directly address their needs