Methodological reflections on the recruitment and engagement of people for cancer screening research in Wales

Juping Yu*, Joyce Kenkre, Sarah Wallace, Susan Thomas, Helen Jessop

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

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Abstract

Cancer is a major threat to public health and the second leading cause of death globally. Population-based cancer screening is an effective way to improve the early detection of a cancer and reduce mortality. Factors associated with participation in cancer screening have been increasingly explored in research. The challenges to undertaking such research are evident, but there is little discussion about how to address such challenges. This article discusses methodological issues associated with the recruitment and engagement of participants in research, drawing upon our experience of undertaking research exploring the support needs of people residing in Newport West, Wales, to participate in breast, bowel, and cervical screening programs. Four key areas were addressed: sampling issues, language barriers, IT issues, and time demand for participation. The paper highlights the importance of ongoing community engagement, the provision of appropriate study materials, and the adaption to different data collection modes to meet participants' needs to participate in research, thus enabling people who are usually excluded from research to have a voice and make a significant contribution to research.
Original languageEnglish
Article numberPY22259
Pages (from-to)148-154
Number of pages7
JournalAustralian Journal of Primary Health
Volume29
Issue number2
Early online date6 Mar 2023
DOIs
Publication statusPublished - Apr 2023

Keywords

  • Cancer screening
  • collaboration
  • engagement
  • inclusion
  • primary care
  • public health
  • recruitment
  • Wales

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