Exploring How the Spiritual Needs of Dementia Patients are Addressed within Care and Treatment Plans (CTPs) in Three Health Boards in Wales

Anne Fothergill

    Research output: Contribution to conferencePosterpeer-review


    Dementia is a global public health challenge now and for future generations. The World Health Organisation (2015) stated that 35.6 million people are affected by dementia with this figure expected to rise to 65.7 million by 2030.

    Living well with this condition is paramount. Thus, care and treatment to persons living with dementia must be provided in a dignified, respectful, and compassionate manner (Francis Report 2013, Andrews Report, 2014). In Wales Part 2 of the Mental Health Measure requires patients in secondary care to have a Care and Treatment Plan (CTP) (WG 2010).

    A research study was completed (December 2016) in which 150 CTPs from patients diagnosed with dementia in three local health boards (ABMULHB, ABUHB, CTUHB) were analysed. The focus was to analyse the content of Domain 7 of the CTP - social/cultural/spiritual needs. Spiritual needs are often not well addressed in practice. This project was ethically approved by USW Ethics' Committee, and externally by the Wales 6 Ethics’ Committee (IRAS) and approved by all three participating Health Boards.
    Collected 150 CTPs: 50 from each Health Board. CTUHB 25 Community, 25 Hospital; ABMULHB 25 Community, 25 Hospital; ABUHB 11 Community, 39 Hospital.
    All CTPs retrieved had Domain 7 completed. Qualitative thematic analysis was then conducted on Domain 7. This was followed up with 2 focus groups with staff.


    From the CTPs eight themes emerged. These were: 1. Religion/ Religious beliefs; 2. Social connections with family, friends and neighbours; 3. Social connections with staff/paid workers and volunteers; 4. Meaningful activities (e.g. photos, memory books, watching TV, hobbies, and work-related activities); 5. Support for family and carers; 6. Culture; 7 Person-centred care and 8. Considered but no detail given (e.g. have social, cultural, spiritual needs met).
    Spirituality was broader than a person’s religious affiliation, but capturing this on the CTP was difficult. Staff agreed that training in completing Domain 7 would be beneficial. Spiritual needs were seen as important by staff in focus group interviews, but they stated that this domain was the least completed of all the 8 domains. Thus, these findings have implications for practice.
    Original languageEnglish
    Publication statusPublished - 17 Jul 2018
    EventICCHNR Swansea Conference - Swansea University, Swansea, United Kingdom
    Duration: 17 Jul 201817 Jul 2018


    ConferenceICCHNR Swansea Conference
    Country/TerritoryUnited Kingdom


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