Activities per year
Background: Considerable attention is rightly paid to preventable deaths in adults with intellectual disabilities. The pattern of these deaths and the implications for services have been less considered.
Method: This paper forms part of a larger cross-sectional study of deaths in a defined population of adults with intellectual disabilities. Data from VOICES-SF were obtained from intellectual disability service providers for each death within their supported population over 18 months, 149 decedents in all.
Results: Only 34.2% of deaths were anticipated, death was often sudden or followed a short illness. Four dying trajectories were identified, and categorized by length of illness, service use, care outcomes, symptom control and cause of death.
Conclusions: Recognition that most deaths in this group were unanticipated implies a need for better preparation for less expected dying and better anticipation. A descriptive epidemiology of dying among people with intellectual disabilities is needed.
|Number of pages
|Journal of Applied Research in Intellectual Disabilities
|Early online date
|30 Nov 2020
|Published - 1 Mar 2021
- End of life care
- Dying trajectories
- Unexpected death
- Death and dying
- Intellectual disabilities
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- 1 Types of External academic engagement - Contribution to the work of national or international committees and working groups
Stuart Todd (Lecturer)1 May 2020
Activity: Other › Types of External academic engagement - Contribution to the work of national or international committees and working groups