A new tool to assess understanding of Down syndrome screening information presented by midwives

Sophie John, Maggie Kirk, Emma Tonkin, Ian Stuart-Hamilton

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    Abstract

    Aims: The research aimed to identify factors that could influence women’s understanding of Down syndrome screening information presented by midwives.

    Methods: Current literature was scrutinised. Components that could influence women’s understanding were identified and a new framework was developed and refined. Measures were selected and developed to create a tool to assess the framework.

    Findings: A new framework and assessment tool, Measuring Understanding of Screening Information and Communication (MUSIC), with developed to assess women’s understanding of Down syndrome screening information, their cognitive status and the midwives’ communicative style.

    Conclusions: This new framework is the first of its kind, encompassing both women’s cognitive status and midwife communication as an influence on women’s understanding. Applying the framework and tool could inform midwifery practice by providing an insight into whether, to what extent and how, cognitive status influences understanding of Down syndrome screening information, the importance of tailoring information to each woman and highlighting areas of communication that are most effective.
    Original languageEnglish
    Pages (from-to)694-715
    Number of pages22
    JournalBritish Journal of Midwifery
    Volume27
    Issue number11
    DOIs
    Publication statusPublished - 8 Nov 2019

    Keywords

    • down syndrome
    • Screening
    • Patient information
    • Framework

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