Guest Feature for 'Positive About Down Syndrome'

Activity: OtherTypes of Public engagement and outreach - Public lecture/debate/seminar


If you’re considering screening, have received a diagnosis that your baby might have Down syndrome, or you have recently had a baby with Down syndrome, or if you know someone in this situation, this site is for you: it’s been created and written by parents who know what this is like.

We, too, have experienced receiving the diagnosis that our baby has Down syndrome, so we know how you’re feeling, what you’re worried about, or what you are feeling guilty for thinking. We are delighted to have this opportunity to share a little of our lives with you to try to address some of those feelings.

We experienced a lot of the same feelings you may be experiencing – many of us were sad, worried and not sure of the future; others felt utterly devastated, that our lives would never be the same; some took it in their stride, although they were apprehensive.

Now that we have experienced the reality of Down syndrome, we know that we needn’t have worried or been sad, upset or devastated. Yes, our lives have been different, but for the better.

We invite you to take some time to look through our stories – stories written by parents who have gone through the same experience and discovered that there is much to celebrate.

We hope that these stories and photos reassure you, inspire you and show you the reality of life with Down syndrome. There is a lot of negativity, fear of and ignorance around Down syndrome, but we are the experts on living with someone with Down syndrome and these stories are written honestly from experience and absolute understanding.

Beth shares with us her experience of growing up with Sara, who has Down's syndrome.
Period4 Aug 2018
Held atPositive About Down Syndrome, United Kingdom
Degree of RecognitionInternational


  • down syndrome
  • siblings
  • inclusive practice
  • disability