Hidden lives and deaths: the last months of life of people with intellectual disabilities living in long‐term, generic care settings in the UK

Stuart Todd*, Jane Bernal, Eleri Worth, Julia Shearn, Sarah Brearley, Mary McCarron, Katherine Hunt

*Awdur cyfatebol y gwaith hwn

Allbwn ymchwil: Cyfraniad at gyfnodolynErthygladolygiad gan gymheiriaid

10 Wedi eu Llwytho i Lawr (Pure)

Crynodeb

Rationale: This paper concerns mortality and needs for end‐of‐life care in a population of adults with ID living in generic care homes.

Methods: Various sampling strategies were used to identify a difficult to find a population of people with ID in generic care homes. Demographic and health data were obtained for 132 people with ID. This included the Surprise Question. At T2, 12 months later, data were obtained on the survival of this sample.

Findings: The average age was 68.6 years, and the majority were women (55.3%). Their health was typically rated as good or better. Responses to the Surprise Question indicated that 23.3% respondents might need EoLC. At T2, 18.0% of this population had died. The average of death was 72.2 years. The majority died within the care setting (62.9%).

Implications: The implications for end‐of‐life care and mortality research are discussed.
Iaith wreiddiolSaesneg
Rhif yr erthygl12891
Tudalennau (o-i)1489-1498
Nifer y tudalennau10
CyfnodolynJournal of Applied Research in Intellectual Disabilities
Cyfrol34
Rhif cyhoeddi6
Dyddiad ar-lein cynnar24 Mai 2021
Dynodwyr Gwrthrych Digidol (DOIs)
StatwsCyhoeddwyd - Tach 2021

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