Gweithgareddau fesul blwyddyn
Crynodeb
Background: Considerable attention is rightly paid to preventable deaths in adults with intellectual disabilities. The pattern of these deaths and the implications for services have been less considered.
Method: This paper forms part of a larger cross-sectional study of deaths in a defined population of adults with intellectual disabilities. Data from VOICES-SF were obtained from intellectual disability service providers for each death within their supported population over 18 months, 149 decedents in all.
Results: Only 34.2% of deaths were anticipated, death was often sudden or followed a short illness. Four dying trajectories were identified, and categorized by length of illness, service use, care outcomes, symptom control and cause of death.
Conclusions: Recognition that most deaths in this group were unanticipated implies a need for better preparation for less expected dying and better anticipation. A descriptive epidemiology of dying among people with intellectual disabilities is needed.
Iaith wreiddiol | Saesneg |
---|---|
Rhif yr erthygl | 12827 |
Tudalennau (o-i) | 594-605 |
Nifer y tudalennau | 12 |
Cyfnodolyn | Journal of Applied Research in Intellectual Disabilities |
Cyfrol | 34 |
Rhif cyhoeddi | 2 |
Dyddiad ar-lein cynnar | 30 Tach 2020 |
Dynodwyr Gwrthrych Digidol (DOIs) | |
Statws | Cyhoeddwyd - 1 Maw 2021 |
Ôl bys
Gweld gwybodaeth am bynciau ymchwil 'Expecting the unexpected: measures, outcomes and dying trajectories for expected and unexpected death in adults with intellectual disabilities in social care settings in the UK'. Gyda’i gilydd, maen nhw’n ffurfio ôl bys unigryw.Gweithgareddau
- 1 Mathau o waith ymgysylltu academaidd allanol - Cyfraniad at waith pwyllgorau a gweithgorau cenedlaethol neu ryngwladol
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International Research collaboration: Death, Dying and Intellectual Disability
Stuart Todd (Darlithydd)
1 Mai 2020Gweithgaredd: Arall › Mathau o waith ymgysylltu academaidd allanol - Cyfraniad at waith pwyllgorau a gweithgorau cenedlaethol neu ryngwladol