Evaluation of Nursing and Midwifery capacity to deliver genomic healthcare in Wales, United Kingdom

Joanne Swidenbank, Emma Tonkin, Maggie Kirk, Siva Ganesh, Deborah Lancastle, Mark Davies, Alexandra Murray, Michaela John, Rebecca Hope

Allbwn ymchwil: Cyfraniad at gynhadleddPosteradolygiad gan gymheiriaid


Across the United Kingdom, healthcare is provided through the National Health Service (NHS) – a comprehensive service, available to all and free at the point of delivery. Each of the four nations (England, Scotland, Wales and Northern Ireland) has autonomy over how money is spent on health in their respective country. In 2017, Welsh Government launched the Genomics for Precision Medicine Strategy, setting out a bold and ambitious plan to bring genomic medicine to the people of Wales (population 3.1 million). Genomics Partnership Wales (GPW) was established to deliver the strategy and provide a united approach to genomics across Wales. GPW represents a number of organisations including Welsh Government, the All Wales Medical Genomics Service, Public Health Wales, Wales Gene Park, regional health boards and higher education institutions. One component of GPW oversees workforce and training activities.
The integration of genomic healthcare into clinical practice requires a workforce with the necessary knowledge and skills to deliver it. Nurses and midwives are the largest professional group within the Welsh health workforce, numbering 32,927 and making up 42% of the total NHS Wales workforce in 2018. As a professional group, they will play a significant role in delivering genomic based care to patients and families. To benchmark the current capacity of registered nurses and midwives to deliver genomic healthcare, an online survey (available in English and Welsh) has been developed. Ethical review and approval was received from the University of South Wales [19ET1101LR].
The survey assess four broad areas: awareness of national and UK-wide genomics initiatives and attitudes to genomics; current professional practice and genomics competency; genomics, and the workplace (including support from colleagues and work environment); and influencing factors. Demographic data including clinical role and (regional) health board will also be collected. On completion, participants have the option to enter a prize draw (one cash voucher).
Data collection will take place in early 2020. Survey information and URL will be cascaded to staff by senior management including directors of nursing and midwifery, and through promotion on staff intranet sites, posters and via social media.
Findings from the survey will be presented along with a discussion of how these data will be used by GPW to inform both workforce engagement activities and the design of educational interventions for integrating genomics into clinical practice.
Iaith wreiddiolSaesneg
StatwsCyhoeddwyd - 2020
DigwyddiadNursing, Genomics & Healthcare - Virtual (originally planned as in person at Wellcome Genome Campus, Cambridge, Y Deyrnas Unedig
Hyd: 7 Gorff 20219 Gorff 2021


CynhadleddNursing, Genomics & Healthcare
Gwlad/TiriogaethY Deyrnas Unedig
Cyfeiriad rhyngrwyd

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