Dangosydd eitem ddigidol (DOI)

  • Irene Tuffrey-Wijne
  • Janet Finlayson
  • Jane Bernal
  • Laurence Taggart
  • Claire Kar Kei Lam
  • Stuart Todd
BACKGROUND: People with intellectual disabilities (ID) are protected from knowing about dying. This study surveyed how staff communicate about death with people with ID facing terminal illness or bereavement.

METHOD: ID staff in the UK (n=690) completed an electronic survey. Detailed data were obtained from staff where a client with ID had died in the past 12 months (n=111), was terminally ill (n=41), or had been bereaved (n=200). Analysis included descriptive and chi-squared statistics.

RESULTS: 52.6% of people with ID who had a terminal illness were told about their illness, and 18.1% were told they would die of it. Of those experiencing an anticipated bereavement, 32.4% of staff said no-one talked about this with them beforehand. A quarter of staff had received training on end of life or bereavement.

CONCLUSION: Death affects many people with ID living in ID services. Staff require training and support in communicating death.
Iaith wreiddiolSaesneg
Tudalennau (o-i)927-938
Nifer y tudalennau12
CyfnodolynJournal of Applied Research in Intellectual Disabilities
Rhif y cyfnodolyn5
Dyddiad ar-lein cynnar18 Chwef 2020
Dynodwyr Gwrthrych Digidol (DOIs)
StatwsCyhoeddwyd - 7 Awst 2020

ID: 3357630